General Resources - Data & Digital
The sharing of content does not indicate endorsement from Respiratory Futures or BTS. If you have a resource that you think would be useful to share here, please let us know by emailing contact@respiratoryfutures.org.uk.
BTS publishes regular national audit reports which are publicly accessible. This portal covers Asthma, Bronchectasis, Pneumonia, Pulmonary...
BTS Lung Disease Registries provide a means of national data collection encompassing three disease areas; IPF, sarcoidosis and MDR-TB. Visit the...
SHAPE links national data sets clinical analysis, public health, primary care and demographic data with information on healthcare estates performance...
A list of the National Clinical Audit and Patient Outcomes Programme (NCAPOP) ran by Healthcare Quality Improvement Partnership (HQIP) Visit the...
National institute for health data science. They publish a large number of open access articles based on health data from the UK . Good starting point...
DATA-CAN is a UK-wide partnership that aims to unlock the power of health data to improve cancer care. Visit the website
Online tool showing data from a range of sources about respiratory diseases including COPD and asthma. Visit the website
An online resource giving the latest epidemiological and economic data on a range of lung conditions. It is informed by the Global Burden of...
Helps researchers determine the approvals they are likely to need to access specific patient data. Visit the toolkit
The National Respiratory Audit Programme (NRAP) for England, Scotland and Wales aims to improve the quality of care, services and clinical outcomes...
N-QI-CAN is a professional network of colleagues undertaking clinical audit and other improvement work across England and was founded in 2000 (under...
The general starting point when looking for NHS data. Large collection of resources including publications, GP data hub, mental health hub, datasets...
Datasets, surveys results and a geographical atlas. Datasets cover topics from choice of breakfast to safe staffing and patients assessed for blood...
Another starting point for those looking for NHS' own statistics. Visit the website
A list of the audits and registries run by the NHS. Visit the website
A collection of case studies where digital solutions were effectively used in healthcare settings, including Respiratory. The digital playbooks have...
A list of copyrighted clinical assessment tools and outcome measures for use within health and social care, provided by the NHS. Visit the resource...
Runs a section on health and social care data - Life expectancy, health inequalities, disability and addiction as well as access to and expenditure on...
European search engine for rare diseases genes and registries Visit the website
A project of data collection and analysis, which includes living conditions, wellbeing, human rights, poverty. It’s run by the University of Oxford,...
The National Lung Cancer Audit (NLCA) is commissioned by the Healthcare Quality Improvement Partnership (HQIP) and works with a number of specialists...
Speaking to people with lived experience and service providers, the experience of using digital services and what might help improve digital inclusion...
The UK Cystic Fibrosis Registry is a secure centralised database, sponsored and managed by the Cystic Fibrosis Trust. It records health data on...